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DiscussionTymlos side effects I've encountered
Osteoporosis & Bone Health | Last Active: Oct 27 11:00am | Replies (284)Comment receiving replies
Replies to "Another question. Does anyone use a Tymlos pen where the needle is already attached? When I..."
@bluebonnet242
The needles come separately with your tymlos pen. You'll get 30 needles per month. They attach to the pen by screwing them on. Fresh needle every day. Alsi very detailed instructions to follow. Once you see it it will be easy.
Good luck!
I used Tymlos for 15 months, no side effects for me , did “miracle” , my spine went down from -3-6 to -3.0 but we are all different…as for the needle mine came all separated, needles, pan, and bandages. Changing needles every time. On the first visit I had a nurse from Tymlos team to demonstrate and educate me, got monthly's call from her. I’m VERY surprise by the way they handle you. You should call Tymlos team. Good luck.
I recognize that a dr may not know all of the practical details, but if your dr really thought the Tymlos pen had a permanently attached needle that would concern me.
That is pretty basic, and if the dr is not familiar with that detail, what about the info on options needed to help address adverse effects?
I believe Tymlos will say the needle should be a minimum of 5/8" long (I forget the gauge), and will also say to inject in the stomach and won't express an opinion that other locations are OK because that was what was done in their studies.
A typical specialist will be able to judge that (alternating) hip injection is OK. Similarly, my original endo ordered 3/8" needles instead of the minimum 5/8" to avoid some issues I had. (And she certainly knew that the needles were one shot disposables so there is an ability to adjust by switching needles.)
The dr's level of knowledge could become important if you experience side effects. For example, Tymlos doses are adjustable. When someone can't tolerate the full 80 mcg (8 clicks) they might try a lower dose. (See attached pics)
Personally, assuming this was not just a miscommunication, I would look for someone else with current expertise in managing bone disease, particularly with respect to osteo drug options.
Good luck!
@bluebonnet242 The needle is not attached!
The company wants a certain size needle and that is what comes with the pen. But my doc okayed smaller needles and did a prescription for them at the drug store.
I did not have any joint pain on Tymlos. I have joint pain on Evenity though.