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New cavity after testing negative for MAC

MAC & Bronchiectasis | Last Active: Apr 14 11:55am | Replies (7)

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@sueinmn

Do you repeat the lengthy treatment? Maybe - but even reinfection after treatment is weighed on the scale of when/whether to treat depending on the amount of bacteria, the specific type, the CT scan (cavities or nodules) and other symptoms.

There are as you say "so many questions" - and so many variables. If I am ever told that I have MAC again, I will head right for a specialty clinic that has the most experience and uses the latest protocols in treating it.

It is rare for a pulmonologist in general practice to see more than a few cases of bronchiectasis in a year - and rarer still to see a MAC infection. Thus many of them are unaware of the importance of things like daily airway clearance and using 7% saline nebs to suppress bacteria growth in the lungs.

Are you being seen by someone experienced in treating Bronchiectasis-caused lung infections?
Sue

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Thanks @sueinmn
Yes, my pulmonologist seems to be a respiratory specialist with knowledge of Bronchiectasis and the related complications. I was told to try the Aerobika which works well. I don’t have access to a large teaching and research hospital like the Mayo Clinic, so specialists aren’t linked in that way. I don’t have MAC, but I would also want someone who has a lot of experience treating it, if ever I do. Thanks for the information.