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Has anyone been diagnosed with GFAP
Autoimmune Diseases | Last Active: Apr 15 7:49pm | Replies (54)Comment receiving replies
Hello! I was diagnosed back in Sep 2022. I have been living with this disease and dealing with all of its symptons since then. Its a daily tasks and it can be difficult to cope with both physically and mentally! I am now 46 years old and have accepted that this is the new way of life.
Replies to "Hello! I was diagnosed back in Sep 2022. I have been living with this disease and..."
@joe1977, Welcome to Mayo Clinic Connect! I’m glad you found this site and discussion. And I love the positive attitude that you have! Thank you.
Do you have any concerns or questions about GFAP that members may be able to answer?
I’m so sorry you are so young with this diagnosis, but your attitude is wonderful! My husband is 74 and he is finding it hard to accept. He knows he is lucky that he is on his feet even though his balance is so off and deals with other minor things. I think you could knock him over with a feather sometimes!
He just had a recent MRI and everything has stayed the same. So no change in over a year. Which is a good thing.
His spine is a mess and we are thinking that might have a lot to do with his walking too.
The restless legs just started a couple of months ago so that is confusing. Our doctor did give him meds for it, but we are trying very hard not to add meds to his condition. Maybe we will have to cave and let him try it.
Thanks for your reply. We all need to hear other stories as this is seemingly so rare you don’t have much to compare with others.
Stay positive …you are a good influence for others dealing with this! 👍🏼
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I hope you can find some things to lift your spirit. I know the journey is rough. Wishing you the best.