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Tulsa Pro - share your experiences
Prostate Cancer | Last Active: Dec 6 9:19am | Replies (136)Comment receiving replies
I chose TULSA after months of studying the options. I was already a cancer patient with Leukemia and 78 years old. I live 8 hours from Mayo Clinic and chose them. My local options were with Doc's that have preference for one or two treatments. At Mayo, there are many options with their level of staff and equipment. At my age I looked closely at side effects, not necessary longevity in that most options result in similar life expectancy. I went through this treatment on April 10 2024 therefore can't give much input yet but so far I feel fine and the most difficulty was normal bodily functions in the bathroom and manipulating the Cath around all of the obstacles More later.
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It is good to hear Mayo is starting to actually do Tulsa, almost one year ago they were just working on buying the machine. I do know they are fairly restrictive on who they will do it with, only because various decisions were made for publications studies that they wouldn't do some gleason scores and so on, even though the makers of Tulsa don't say that. So while good that Mayo is doing it, they have more limits because everything at Mayo is part of a study and everything there is in a study even if you don't realize it. The study parameters determine who gets it, not your need. So if Mayo accepts you for Tulsa, good. If they say no, try another place because they have study parameters they have to work with for the study.
It is not the funnest thing having a catheter, but after it is out you may need alpha blockers for some weeks ahead. Let us know how it goes.