@juliesheff5
Thank you for your message. I had to look up nOH since I wasn’t familiar with the acronym. I seem to have many of the symptoms and will ask my new neurologist end of April about PET scan in addition to MRI/MRN.

Did you ever get tested for small fiber neuropathy with a punch biopsy (usually done taking sample from thigh and calf)? I tested positive with SFN which I understand can affect the autonomic nervous system.