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CAR-T Cell Therapy: Introduce yourself and connect with others

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 9 9:21am | Replies (224)
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@charlenekeogh

Good morning @beeclee
My 33 yr old son was diagnosed in July with CTCL\MF and is receiving light therapy as well. It has been very good for him. We found a dermatologist close to our home who has been such a help to my son mentally and physically. Generally we travel to NYC to Sloan but now he doesn't have to go monthly but every 3 months. Less Stress. There is so much to know and read about this disease/Lymphoma don't stress yourself out.
Enjoy life, every second of it.
I hope your light therapy treatments are going well.

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Replies to "Good morning @beeclee My 33 yr old son was diagnosed in July with CTCL\MF and is..."
beeclee | @beeclee | Apr 11 11:12am

Thank you for your well wishes. I have had 18 treatments (3 a week) and some of my lesions have disappeared and the rest are receding. My main complaint is fatigue but that could be age related.

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