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DiscussionAdrenal Insufficiency and Tapering Prednisone
Polymyalgia Rheumatica (PMR) | Last Active: Jul 19 11:06pm | Replies (22)Comment receiving replies
Replies to "Seriously, you've never felt totally 'over it' after everything you have been through ? You must..."
I wouldn't say I'm completely over it but I'm getting close. I sometimes think about everything when I post this stuff --- it seems therapeutic to write about it now.
PMR doesn't bother me so much anymore. Trigeminal neuralgia bothers me the most -- I try not to think about that.
I actually thought PMR was a blessing when it was diagnosed, I got all the help I needed after that. I was managing reactive arthritis, uveitis and trigeminal neuralgia myself with prednisone supplied by my ophthalmologist. My ophthalmologist prescribed whatever dose of prednisone I wanted for uveitis flares. My ophthalmologist didn't want me to run out of prednisone.
About 15 years ago, I threw away my entire supply of prednisone. That was a huge mistake because that led to PMR being diagnosed. I never had any problems tapering off prednisone when it treated uveitis. I only needed a couple of weeks of high dose Prednisone followed by a fast taper to quell uveitis flares. My ophthalmologist prescribed massive amounts of prednisone. I didn't need nearly as much prednisone that was prescribed so I had plenty to spare. My ophthalmologist of 20 years eventually tossed in the towel. He told the uveitis specialist that I was "skilled with prednisone tapers."
I wasn't so skilled with tapering off prednisone after PMR was diagnosed!