← Return to Small Fiber Neuropathy, Sjogrens, Hashimoto's

Discussion

Small Fiber Neuropathy, Sjogrens, Hashimoto's

Autoimmune Diseases | Last Active: Oct 3 4:11pm | Replies (38)

Comment receiving replies
@suetex

I had my first infusion of Rituximab yesterday. I promised to report on it and I shall. I'll let the mentors decide if it is of interest to anyone. I was fine all day and the nurse watched me intensly for any reaction. I had none at the fusion center. But later that eve I had very loose stools that went on a good while. No cramping or nausea, just total bowel emptying. Don't know if this was an allergic reaction or not. Also felt very over heated during night.
The next morning I felt as usual except for one thing of note: The neuropathy (My diagnosis, not seen by dr. yet) in my hands which had just started a few days ago, was gone. There had been a numbness which was replaced by a sort of vibratory feeling. Only thing different but signicant, I think.
My diagnosis: SFN of legs brought on by Sjogren's Syndrom. Loss of weight bearing balance and muscle wasting. Have been doing IVIg since last Sept. with no improvement. Biopsy of rt. leg showed zero fibers at ankle and knee. My immune system was taking them out as fast as they could be made. More tomorrow perhaps.

Jump to this post


Replies to "I had my first infusion of Rituximab yesterday. I promised to report on it and I..."

Hi, suet, What is Rituximab", Is that for Sjogrens? I think my Rheumatologist mentioned it. I receive IVIG infusions, S.F.N but, she did not want me to have both. And I have failed laminectomy 5 levels!!!! Lots of pain from that to!