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Living with someone on high-dose long-term prednisone
Polymyalgia Rheumatica (PMR) | Last Active: May 10 10:01am | Replies (23)Comment receiving replies
@glinda47
Thanks for your kind words. I agree with you about the doctor. Not sure if I mentioned it here or not, but I am planning to put everything together and file a formal complaint (I have lots of documentation which will support my claim). I don't want this to happen to someone else. What if he didn't have me to advocate for him? He was too sick to advocate for himself. Very fortunately we are on the right path with a new doctor who is on top of it all and very knowledgable. She seems to have no issues at all asking for labs and other tests so I'm not sure why the other one seemed to either doubt me or not know much about these diseases. Which would be hard to imagine given she's a rheumatologist.
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Seems appropriate to me to file against this woman. She did not do her job which involves matters of life, death and other devastation, such as blindness!!! I notice the reluctance sometimes with docs to run comprehensive labs that can be so revealing of disease, etc. I understand that there are few real specialists in this country, ones who have the passion, humanity, brains and work ethic to really dig in, research and get to the bottom of an illness.
They have saved people who literally did not want to live anymore and had been to 50-60 docs, specialists included and no one could help them.
Thankfully, your experience turned out well.
Wishing you the best.