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Tired and weakness after wks

MAC & Bronchiectasis | Last Active: Apr 12 9:25am | Replies (15)

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@jw87

I only started finding help when I went to a teaching hospital. I know I keep saying that, but I live in Oregon, and I thought we had good healthcare, but it wasn’t until I found out That I have pulmonary hypertension, And my cardiologist and my pulmonologist were simply ignoring it. Then I got fed up because I have been coughing for five years and asking To be tested for MAC, but my Pulmonologist wanting me to be tested for other things like Gerd and postnasal drip or anything that would keep him from having to do the bronchoscopy to test for MAC. After I found out about the pulmonary hypertension, I went to my pulmonologist and I told him directly I want to be tested for Mac I am tired of Coughing all the time and not feeling well. I had done some research and found out that at OHSU they had A pulmonologist who specialized in pulmonary hypertension, and an infectious disease Doctor who specializes in Mac. I am so glad that I moved everything over to OHSU because I became very sick right after that. I went into afib (after 2 years of not) And had to have a pacemaker. Then, I and I had a pulmonary embolism, and that led to heart failure. Then I had pneumonia. I am so tired every day, I have not started treatment for the MAC It took months to get into the infectious disease doctor. I wanted the one who was the best, so I had to wait. I see him this month. It has been a horrible long road and I believe that if my original specialist would have done something earlier I would not be in the shape that I’m in today. I really highly recommend getting the best specialist you can get in your area. Don’t let them keep putting things off. It does not pay off.

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Replies to "I only started finding help when I went to a teaching hospital. I know I keep..."

I understand what you are saying. If I had listened to my regular pulmonologist I would be much worse off than I am now. I did my own research and struggled through finding the right things and the right way to do them and I better off for it. I now have a Pulmonologist that specializes in MAC at a teaching hospital and the depth of knowledge and caring are much better.

JW87, You did not mention your CT scans and radiologist reads. There are signs the radiologist see's when they read the CT scan and the suggests a Echo and/or Echo w/bubbles for further evaluation. After MAC, I developed SVT after finally seeing some cardiologists.