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What am I actually supposed to be doing to get better?
Post-COVID Recovery & COVID-19 | Last Active: Jul 28 9:27pm | Replies (53)Comment receiving replies
I’ve had LC for over three years. At this point, I might have a really good week and then a really bad one. I don’t believe anything I’m doing/not doing affects anything. I used to think if only I slept more, made myself take a walk, drank more green tea, got out of the house, eat more, etc. Now I’m of the opinion that LC is kind of driving the train and I can only get off when it makes a stop, but it isn’t up to me. LC determines my behavior, activities, sleep, exercise, etc. It’s not a bad idea to see a specialist to address a certain symptom for symptomatic treatment, especially if you experience rashes or things that can be treated with existing medication. It won’t help the underlying LC, but it will help you feel better if it can be treated. I also get the LC depression/anxiety/sometimes borderline suicidal mindset where everything feels so out of control and overwhelming that you feel DESPERATE to do something, anything, especially if you were a person with an extremely active life pre-COVID. Just the tiniest bit of control can really help with that. A good day for me means taking off to hike, etc. even if it’s only for an hour instead of six. It’s not much, but I did something.
Replies to "I’ve had LC for over three years. At this point, I might have a really good..."
Wow!! A hike! Even for an hour is amazing. Having good weeks and bad weeks is encouraging.
I’ve had long Covid for over 2 yrs. Still stuck in the resting/napping stage. Do anything and I pay.
I remember when I was beginning to get better from having morning sickness it was the same thing. A good day and then a couple bad days…….
So hopefully I will end up like you. I can only pray
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I feel like you are describing my situation exactly. I have not been officially diagnosed with LC but over the past 3 years have been tested for everything imaginable. I typically have a few labs that are "off" but nothing bad enough to warrant treatment or another diagnosis apart from POTS (hyper adrenal) and chronic altitude sickness. I am a different person post covid (which I've had 2x since 2021). I struggle with PEM, dizziness, shortness of breath, muscle and joint pain, insomnia, night sweats, gut issues and anxiety to name a few. All of which were not part of my life pre covid. I'm thankful to have found this group to realize it's not all in my head but am feeling depressed to hear that many of you have not found anything that helps, which is true for me as well - goodness knows I've tried dozens of medications for a variety of symptoms. Nothing works. Thanks for being here and being honest.