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Neuroendocrine cells in Breast and Lungs DIPNECH

Neuroendocrine Tumors (NETs) | Last Active: May 10 10:17am | Replies (28)
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@grec

I am coughing up blood tinged phlegm every day. This is how it was found. At first they said I had cancer in the lungs. They sent me to a bigger hospital to have a lung biopsy done. The biopsy came back DIPNICH. I have it in both lobes. I have a tumor in each lung. At this time my symptoms are blood tinged phlegm, coughing, shortness of breath and O2 stats down to 93.

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Teresa, Volunteer Mentor | @hopeful33250 | Apr 10 10:36am

Hello @grec,

I'm sure you have a lot of questions about this new diagnosis.

On Connect, we have several members with DIPNECH. I would like to invite one of those members, @californiazebra, to join you in this discussion so that she can share her own experiences with you.

What type of treatment is being suggested by your medical team?

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