Hello @harley4650

I'm sorry to hear that your symptoms are worse. You say that you never had embolization. Was embolization not recommended as part of your treatment plan?

Are your symptoms better controlled now that you have hospice care?

Might I suggest you get a 2nd opinion? It's just a thought. Also, possibly speak with a surgeon who is familiar with Nets in the liver. My hubs had stage 4 Nets originating in the small intestines and the liver seemed to be the "go to" spot for the tumors. It was speading and growing. He had "debulking of the liver" surgery which had gone to the other lobe. He then underwent a radiation treatment called Lutethera. Both were done last year. And he has had 2 CTs since Jan and with his continual shots of sandostatin (octreotide) he is once again stable. If you live near Charleston SC I can recommend an excellent Oncologist and surgical oncologist who both specialize in NETS. His surgical oncologist happens to also specialize in liver surgery. We felt like we got the best of the best. I encourage you to seek more options. Also, (I guess I should've asked first) why have they put you in hospice care? 🙏🙏 you can go another route.