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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 1 day ago | Replies (863)

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@ericschisler

Hi. I was diagnosed with soft tissue scarcoma in the left atrium. Primary heart tumor UPS. Very rare. I am told only 100 cases occur each year, Started Immutherapy. May be doing shortly Proton therapy. Looking for advice. Thanks

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Replies to "Hi. I was diagnosed with soft tissue scarcoma in the left atrium. Primary heart tumor UPS...."

Welcome, @ericschisler. You may be interested in this related discussion to connect with others with UPS
Undifferentiated Pleomorphic Sarcoma
https://connect.mayoclinic.org/discussion/sarcoma-256d3d/
And this podcast
Proton beam therapy spares surrounding tissue when treating bone cancer https://connect.mayoclinic.org/blog/podcasts/newsfeed-post/proton-beam-therapy-spares-surrounding-tissue-when-treating-bone-cancer/

While not UPS of the heart, @me67 also had proton beam therapy for UPS.

Eric, what type of immunotherapy are you on? How is it going? Is this a recent diagnosis for you?