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Azithromycin, Ethanbutol, & Rifampin Drug Therapy for MAC

MAC & Bronchiectasis | Last Active: Nov 3 10:53pm | Replies (126)
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@helenmp

Hello
My name is Helen
I’m glad I found this site, just knowing there are others out there with similar issues helps me know there are some people that can offer advice to me.
1 1/2 years ago I had a bronchoscopy for a very small nodule, biopsy showed + MAC. I was asymptomatic, (this nodule was an incidental finding, as a follow up CAT to rule out a inguinal hernia).
Since the procedure I have an occasional cough seldom productive. I feel pretty well.
I just don’t completely understand why it appears antibiotic therapy is discouraged. I understand there are numerous side effects, but I’m weighing that out with the end result of this disease if I do nothing.
I have done some research and am not too excited on the longevity effects on my lungs.
Any help or suggestions would be welcomed as to suggestions on medication therapy with antibiotics.
Thanks for your time
Helen

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Replies to "Hello My name is Helen I’m glad I found this site, just knowing there are others..."
Sue, Volunteer Mentor | @sueinmn | Apr 9 1:34pm

Hello Helen, there is quite a specific protocol as to when to treat MAC with antibiotics, but that doesn't mean to "do nothing" before that point. Airway clearance and 7% saline nebs can reduce the amount of infection without antibiotics. The 3 antibiotic regimen is long and difficult, lasting a minimum of 18 months. MAC is notorious for antibiotic resistance, so a single drug won't cure it. It also hides deep in the lungs and grows slowly, so many months of treatment are required to knock it out.
I'm on my phone so cannot give links, but if you wander through the MAC discussions, you can find lots of great information.

Found it! Here's a link:
https://m.youtube.com/watch?v=bcvHKHzi4Q0
Sue

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