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Small Fiber Neuropathy, Sjogrens, Hashimoto's

Autoimmune Diseases | Last Active: Oct 3 4:11pm | Replies (38)
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@pnpam75

My neurologist told me that PN is not genetic when I specifically asked about that when I was diagnosed a couple of years ago. Neither of my parents nor brother suffered from it. My neurologist is a professor at UBC (University of British Columbia) in Vancouver, BC, Canada and has a practice ( speciality in mobility cases) at Vancouver General Hospital. Are you sure that it is genetic? My neurologist said that it was neither genetic nor contagious- just random bad luck. I worry for my children and grandchild in their futures.

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Replies to "My neurologist told me that PN is not genetic when I specifically asked about that when..."
Becky, Volunteer Mentor | @becsbuddy | Apr 9 7:49pm

@pnpam75 Welcome to Mayo Clinic Connect. We’re glad that you joined the group!
From the little research that I did, PN is hereditary or genetic. This site is from one of the departments at the National institutes of Health.
https://www.ninds.nih.gov/health-information/disorders/hereditary-neuropathies#:~:text=There%20are%20no%20standard%20treatments,foot%20or%20other%20skeletal%20deformities.
Here is a discussion/support group specifically for those with PN. https://connect.mayoclinic.org/group/neuropathy/. There are many different topics and you could ask your same question there.
Do you think you can model to your children/grandchildren how to live with PN so that if they ever get it, they will have a positive role model?

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