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Spreading NET

Neuroendocrine Tumors (NETs) | Last Active: Aug 6 7:30pm | Replies (34)

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Profile picture for michaelv @michaelv

Funny story went to the hospital years ago and they never found anything other than an ulcer they attributed to my nausea. Last year it got to the point I was sick everyday went to a different hospital and on a scan they saw the tumors on my liver and did the biopsy on my pancreas to confirm where they were coming from. So my octreotides started last July and my embolizations started in December. Unless they are looking for pancreatic cancer they won’t find it since the symptoms are similar to other health issues. Be insistent if you aren’t feeling better and get those scans.

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Replies to "Funny story went to the hospital years ago and they never found anything other than an..."

Hi @michaelv

Your message, about being insistent is important. Being proactive regarding your health care is vital.

How did your embolization go? I have grade 2 metastatic to the liver with no known origin, but Dr believe it originated in the GI track. Octreotide shots are not keeping tumors from growing, so will be going to another treatment. Getting different opinions. Could be surgery or PRRT or histotripsy. Appreciate your sharing your journey.

@michaelv
Were you fully sedated (general anesthesia) for the embolizations?