Connect
Discussion
Comment receiving replies
Replies to "Hello @michaelv and welcome to the NETs support group on Mayo Connect. You and your medical..."
Neuroendocrine Tumors (NETs) | Last Active: May 22 9:47am | Replies (26)
Comment receiving replies
Hello @michaelv and welcome to the NETs support group on Mayo Connect. You and your medical team have certainly been proactive in dealing with these tumors. Your experience should be helpful to others facing multiple NET tumors. I am also glad to hear that as a result of your embolizations, your symptoms have lessened. That must be very encouraging for you.
How long ago were your NETs diagnosed?
Replies to "Hello @michaelv and welcome to the NETs support group on Mayo Connect. You and your medical..."
Its been 2 yrs. from net diagnosed,give you heads up never had embolization symptoms are worse and under hospice care
Connect
Funny story went to the hospital years ago and they never found anything other than an ulcer they attributed to my nausea. Last year it got to the point I was sick everyday went to a different hospital and on a scan they saw the tumors on my liver and did the biopsy on my pancreas to confirm where they were coming from. So my octreotides started last July and my embolizations started in December. Unless they are looking for pancreatic cancer they won’t find it since the symptoms are similar to other health issues. Be insistent if you aren’t feeling better and get those scans.