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My husband has G3 Stage 4 insulinoma, Primary in Pancreas and “Too many to count in liver- we are 2 years in may, octreotide for the two years also. Two embollizations, 5FU chemo, cap/Tem, Now PRRT 3rd treatment next week. He is doing well and we get scans this week to check. Today we go to the cancer cardiologist. We had a week in Florida with our sons families/grandbabies. He had some of the worst edema in his lower legs/ankles/feet I have ever seen. He increased his water pills for about 5 days and it helped. Could this have been from the increased activity or stress? He is still swollen in ankles so will discuss with cardiologist today. Wondering if anyone else gets the edema more with the PRRT? Just wondering what to expect with the next two treatments.
Replies to "My husband has G3 Stage 4 insulinoma, Primary in Pancreas and “Too many to count in..."
Definitely discuss with your doctor's, all I can offer in my wife's case, is her weight has slowly gone up over the past year of CAP/TEM, Surgery on Pancreas, and Liver, and 4 PRRT treatments. She is now 30 days past her last PRRT treatment and is starting to lose weight again. Definitely, feeling better after now being treated for almost 2 years. You got this!
Hello bnjncrew,
I'm also having severe edema in my legs and feet. I have also developed acities. My Net specialist doesn't feel its from the
tumors or PRRT treatment I had 3 months ago. The net specialist and my Oncologist are looking at possibly cardiac as the cause. I had Carcinoid Heart Disease and had two valves replaced 1 yr ago (severe regurgation tricuspid and pulmonary valves.) I just had an electrocardiogram. It looks like I could have some issues there. The Oncologist wasn't real
specific in his explanation. I have an appointment with the Cardiologist.
Good Luck with your
treatments !
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Hello @bnjncrew
I appreciate your update. I am sorry to hear of your husband's edema. I'm glad to hear that he will be seeing a cardiologist later today. Perhaps the doctor can answer your question about the PRRT and edema. Did he have edema prior to the PRRT?
I look forward to hearing from you again. Will you post an update after your appointment?