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Living with someone on high-dose long-term prednisone

Polymyalgia Rheumatica (PMR) | Last Active: May 10 10:01am | Replies (23)
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@glinda47

So glad to hear of your husband's progress.
What a horrifying story. Omigosh. Why all the fighting to be tested? Seems like docs don't want to test you and I don't understand it. There must be incentive not to test from the labs. That is inhumane at the very least.
Thank the universe you were there to fight for him even when the "doctor" was dead wrong.
She should absolutely not be practicing.
May you both continue to heal from this terrifying experience. He is very fortunate to have you, Isabelle.

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Replies to "So glad to hear of your husband's progress. What a horrifying story. Omigosh. Why all the..."
isabelle7 | @isabelle7 | Apr 10 10:39am

@glinda47
Thanks for your kind words. I agree with you about the doctor. Not sure if I mentioned it here or not, but I am planning to put everything together and file a formal complaint (I have lots of documentation which will support my claim). I don't want this to happen to someone else. What if he didn't have me to advocate for him? He was too sick to advocate for himself. Very fortunately we are on the right path with a new doctor who is on top of it all and very knowledgable. She seems to have no issues at all asking for labs and other tests so I'm not sure why the other one seemed to either doubt me or not know much about these diseases. Which would be hard to imagine given she's a rheumatologist.

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