← Return to Tested postive for Lynch Syndrome: Anyone have this?
DiscussionTested postive for Lynch Syndrome: Anyone have this?
Cancer | Last Active: Nov 26 8:15pm | Replies (46)Comment receiving replies
Replies to "Hi @bsox1901, I moved your message to the cancer group to connect you with others talking..."
Having tested positive for Lynch syndrome, what monitoring or testing is recommended for you that would otherwise not have been? Does this change your insurance options?
<br>Hi, my insurance has not changed as I have Military insurance. I guess that does make a difference. I see like 4 cancer specialist a year. Mammogram, one a year colonoscopy, endoscopy, female and skin at least twice a year. My life has not changed. I'm just aware of what can happen. I've lost my whole family to Cancer, all different kinds and I've had Endometrial Cancer. Stay on top of it and find really good Dr.s and if you need help let me know. I've got a pretty good network. Hope this finds you well. Feel free to chat anytime. Huhs<br><br>
My GI Dr @ Mayo is the one who got me tested. Since my positive result 6 months ago. I have had a Colonoscopy, ERCP, a Liver Biopsy and a MRI of my Pancreas. I have transplant checkups every year. This new protocol has been added to my testing. I see it as , Knowledge is Power.
Ive had two heart transplants at Mayo Clinic Jacksonville. They offered me genetic testing because of me family history. Both parents died of Cancer. Dad Colon 3/11/1983 Mom 5/11/2015 Leukemia.