Connect
← Return to Sjögren’s Syndrome: how do you manage the symptoms?
Discussion
Sjögren’s Syndrome: how do you manage the symptoms?
Autoimmune Diseases | Last Active: Apr 10 8:16pm | Replies (158)Comment receiving replies
in reply to @cindylb Wow, your journey has been a long one. I have this syndrome and will soon be seeing an opthamologist again to test for Wilson's Disease. In my case, the labs so far have been negative, but as you know,labs are not always accurate. My dermatologist mentioned something called Nizoral, but I have not tried this for my scalp. My problem does not sound as bad as yours. I am sorry. You can find the product on Amazon, and if you are a Prime Member the cost is about $8 for 2 oz. No nuts. Cortisone, small amount.
You know, autoimmune disorders are so difficult to diagnose and treat. I am not looking forward to my endoscopy, colonoscopy later this summer or early fall. For me, the Raynauds is the worst. I must look like a fool wearing fur gloves during the hot summer in CA.
Best to you my friend
Replies to "in reply to @cindylb Wow, your journey has been a long one. I have this syndrome..."
Connect
Thank you so much for the scalp option. It's been a problem for years. I'll let you know if I find it and if it works.
I was diagnosed with dry eye decades ago and was on Restassis but over the years and after seeing 7 opthamologists, only one finally recognized the systemic nature and did the ANA test, which came back positive for me. It's a long road and difficult with autoimmune, as you say. Good luck. Tell me more about Wilson's disease if you have time. I hope you get some answers. Sometimes just knowing what you have is helpful.....even if they can't fix it or don't completely understand it. Hugs.