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Seronegative Sojourns

Autoimmune Diseases | Last Active: Apr 9 7:36pm | Replies (18)

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@pb50

Who is “they”? Plenty of rheumatologists in the Dallas area.

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Replies to "Who is “they”? Plenty of rheumatologists in the Dallas area."

They rheumatologist and research neurologist out of Boston. I could not get answers on my neuropathy. My neurologist died in 2022. I went from seeing him every two months and discussing treatment to just being told to come see them once a year. They refuse to dispense muscle relaxers or do Botox injections. I found out when I went to Boston about the type neurologist I need a neuromuscular neurologist treats neuropathy just and FYI not many in Dallas. I was disappointed in rheumatologist because I scored 13 and he said you had to score 14 to be treated for rheumatoid arthritis. I have discovered not every rheumatologist knows how to test for seronegative sojourns. Some have not heard of it. You have to take a biopsy from the glands. It then is sent off for testing. All they have done is ultrasound. So unless the rheumatologist knows how to test for it it’s a waste of my time to keep going to see them. I have a family history of rheumatoid arthritis my mother, grandmother and my nephew was born with juvenile rheumatoid arthritis. He is now 29. Pretty good indication I have it. For the first time ever the rheumatoid doctor did ultrasound on my wrist and hands and told me I have alit of inflammation duh tell me something I don’t know. He wants me basically on a vegetarian diet. No milk, flour, eggs, sugar, grain,corn and so much more nos. I was thinking what I could have for breakfast. No oatmeal (grain/white flour/no flour period) that removes pancakes, no eggs, I already don’t eat pork, and no cereal, no homemade cinnamon rolls.
I can have no hormone chicken, turkey and wild caught fish only no farm raised. 90%percent fish farm raised with hormones.

Rheumatologist-not very good
Neurologist
Cardiologist
Electrophsiologist
Research Neurologist (Boston)
Dr Anne Oaklander found the exact specialists I needed (there is truly only one neuromuscular neurologist UT Southwestern and a new rheumatoid doctor that would treatment me) without treating the autoimmune disorder they can’t treat the neuropathy. I am almost confined to a wheelchair over the neuropathy. In fact I almost lost my foot.
Eye doctor
Dentist