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Breast cancer patient also with osteoporosis: AI, Prolia and Reclast
Breast Cancer | Last Active: Apr 8 9:33am | Replies (23)Comment receiving replies
hi patclem, I'm on Forteo almost a year. For me it's a dream drug. I haven't had any side effects. Well, my fingernails are harder to clip. Some people have adverse effects from Forteo, but when the medication is stopped it leaves the system very rapidly--so no long term effects. It isn't in my thinking to continue a medication that causes any discomfort.
Tymlos may be a more effective medication than Forteo, but I'm so satisfied.
The effects with Evenity can be sustained over an excruciatingly long several months. I'm not prepared to deprive my body of sclerostin because of it's reported advantage in cardiac valves and joint chondrocytes.
Our bodies respond so differently that we are all guessing at first.
I would suggest getting bone markers before and every three months to get a better idea if the drug is building bone. Wishing you luck
Replies to "hi patclem, I'm on Forteo almost a year. For me it's a dream drug. I haven't..."
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@gently I worry that the effects of sclerostin suppression are not adequately studied. Most studies are on cardiovascular effects and those studies showed no difference in risk between Evenity and placebo, and small difference (but significant) between Evenity and alendronate (which might be because alendronate has a positive effect).
But sclerositin is throughout the body, including central nervous system, joints/cartilage....I am having long complicated weird dreams that have no connection to daytime concerns. In some ways that concerns me more than joint pain.
For breast cancer, I was told Reclast , and my cousin is on Zometa- both zoledronic acid. I wonder if doctors are hesitant to prescribe bone builders like Forteo, Tymlos, Evenity because they can't be given when metastasis is possible. Maybe in early cancer this is still an issue if/when cells are still wandering around-???