Replies to Before you give up altogether on the treatment, maybe just try dropping rifamycin (rifampicin or rifabutin)....

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MAC & Bronchiectasis | Last Active: Jul 28 7:06am | Replies (68)

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@thorne

Before you give up altogether on the treatment, maybe just try dropping rifamycin (rifampicin or rifabutin). I just finished a clinical trial testing just Arikayce, azithromycin and ethambutol because rifamycin is so hard to tolerate. Good luck!!

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Replies to "Before you give up altogether on the treatment, maybe just try dropping rifamycin (rifampicin or rifabutin)...."

pa 111 | @pagechapman | Apr 7, 2024

Thanks. Page

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lindyjones416 | @lindyjones416 | Aug 29, 2025

I landed in the hospital due to adverse effects of rifabutin. My white blood cells were almost gone. This was the third one of the related pills. The other ones raised my blood pressure too much. Then Arikayce. I'm losing my hair, eyebrows, and voice after one week and was taken off all the antibiotics (including the other big two). The doctor will wait 3 months to do another culture and reassess.

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