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Has anyone really gotten over CIDP?

Autoimmune Diseases | Last Active: May 20 11:48am | Replies (49)

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@slkanowitz

Harley, I am 10 minutes from Scottsdale in Fountain Hills and the neurologist is in Scottsdale, Dr Sivakumar. He has superb credentials and is a neuromuscular specialist, very knowledgeable about CIDP. Drs can do a lot of arm twisting with insurance companies if you ask and they are willing (appeals, etc) Many of the pharmaceutical companies have patient assistance programs that cover the cost or your copays if you meet the financial criteria. Most of those are reasonable, not at poverty levels. Look up the company that makes Rituxan and call them. It’s worth starting it there, as you get 2 infusions 2 weeks apart then wait 6 months for the next. I hope you make some progress with this and your move to AZ goes smoothly. I am happy to help you out when you get here or provide more information prior to your move. Good luck, take care!

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Replies to "Harley, I am 10 minutes from Scottsdale in Fountain Hills and the neurologist is in Scottsdale,..."

I might just take you up on your Neuro doc suggestion.
I have friends that live in Fountain Hills and it isn’t that far from where I will be living.
Hang in there,as I will.
Hopefully I can touch base with you when I’m out there permanently,as I will need all new physicians.

Forgot to mention that Dr S is sure that Rituxan will be covered by my insurance.
I did get a call this week from Serena in his office and she told me it would be covered in Arizona.
I don’t get it really, I was denied here in Florida, but approved in Arizona.
I will be getting them as soon as I can.
Maybe Dr. S and his staff fight harder for this drug, and my Florida neurologist didn’t.
That could be the case.