← Return to Has anyone really gotten over CIDP?

Discussion

Has anyone really gotten over CIDP?

Autoimmune Diseases | Last Active: May 20 11:48am | Replies (49)

Comment receiving replies
@slkanowitz

Dailyhope, coping with an illness like this is a huge challenge, I am sure for all of us. I too spend much of my day in recliner or on couch, but I try to keep busy. Focusing on helping others, like through this forum, makes me feel like I’m doing something worthwhile and takes the focus off my own problems. I do best in the morning so I try to get done what is essential then. I pace myself alternating hard and easy tasks. I can’t stand or walk very well so I try to be efficient with trips across the house and do tasks like meal prep sitting down. I also plan one enjoyable thing every day so I have something to look forward to, something fun or creative. Getting outside is important to me, as is going somewhere even if it’s an errand. I’m lucky to have a great husband and I say thanks and show appreciation for all he does for me. In spite of my best efforts I get down at times and allow myself to cry or be angry for awhile. It’s helpful to have a therapist to talk to and put things in a more positive perspective. I have been ill for 40 years so I’ve had a long time to work on ways to cope. CIDP for probably 12-15 years, but Guillain Barre following Covid really took me down last summer. I hope some of this helps you and treatment gets you to feeling better. Strength and hugs to you!

Jump to this post


Replies to "Dailyhope, coping with an illness like this is a huge challenge, I am sure for all..."

@slkanowitz
This is so very helpful❣️ Thank you for taking the time to share your coping methods with me. Managing limited energy, not just time, is really important. It is wonderful your husband is so helpful and supportive. Bless his heart! I am fortunate my ex-husband is helping me with some things at my home and with our teenage son and my dogs/cats. I can’t really do much now which is really depressing because I used to be so productive and energetic. My faith is my foundation and I am just taking one day at a time now. I have had to accept my limitations and thank God for the little things every day. May God bless you❣️