← Return to Has anyone really gotten over CIDP?

Discussion

Has anyone really gotten over CIDP?

Autoimmune Diseases | Last Active: May 20 11:48am | Replies (49)

Comment receiving replies
@harley22

Thank you for your reply.
My Neuro here in Florida wanted me to start Rituximab infusions but my insurance wouldn’t cover them, and I had a 700.00 copay each infusion.
If I knew they would help me, I would pay out of pocket for them.
Right now I will be moving to Scottsdale AZ as soon as my house is ready.
It will be sometime between 7-8 mos maybe.
I’m in a quandary because do I start something here, or wait til I get to Scottsdale.
I will be needing a neurologist there, and I would gladly take any recommendations for one from you.
Thank you for your help!

Jump to this post


Replies to "Thank you for your reply. My Neuro here in Florida wanted me to start Rituximab infusions..."

Harley, I am 10 minutes from Scottsdale in Fountain Hills and the neurologist is in Scottsdale, Dr Sivakumar. He has superb credentials and is a neuromuscular specialist, very knowledgeable about CIDP. Drs can do a lot of arm twisting with insurance companies if you ask and they are willing (appeals, etc) Many of the pharmaceutical companies have patient assistance programs that cover the cost or your copays if you meet the financial criteria. Most of those are reasonable, not at poverty levels. Look up the company that makes Rituxan and call them. It’s worth starting it there, as you get 2 infusions 2 weeks apart then wait 6 months for the next. I hope you make some progress with this and your move to AZ goes smoothly. I am happy to help you out when you get here or provide more information prior to your move. Good luck, take care!