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Surgeon missed the margins. 2nd surgery

Breast Cancer | Last Active: Apr 24 7:06pm | Replies (39)

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@californiazebra

Hi @sirene
In response to your questions, my original diagnosis was stage 1A 7mm, no lymph nodes, ER+ PR+ HER2 neg. I was found to be BRCA2+ and a few years later CHEK2+. Ki-67 < 20 moderate. I only recently discovered in the original reports that I had LVI which is considered a negative prognostic factor, but its significance is debated by some. Never mentioned to me. Maybe back in 2013 they knew less about it. I had a double mastectomy, ovaries/tubes removed, no other treatment. I was told tamoxifen wouldn’t make much difference in my case so just skip it and avoid the side effects. They said 3% chance of recurrence. Current oncologist doesn’t agree.

7 years later I felt a hard immobile painless marble on my bony chest (no reconstruction) in the shower. Luckily, I happened to have my annual ultrasound appt two days later and they immediately scheduled a biopsy and spoke as if they knew it was cancer. I hope they would have found the lump if I hadn’t. The cancer was now highly aggressive Ki-67 50% in my chest wall and pectoral muscle. I had the 1.2 cm tumor removed and then 37 radiation treatments. I have been on Kisqali and Letrozole for 3 years and will stay on those as long as they’re effective. Next 6 month CT scans of chest, abdomen and pelvis are in a couple weeks. 🙏🏻

I’ll pray it’s one and done for you. 🙏🏻

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Replies to "Hi @sirene In response to your questions, my original diagnosis was stage 1A 7mm, no lymph..."

May your next screening comes back clean. God bless you!

Did they do genetic testing on you in the beginning? Are you saying that you had lymph nodes involved but were not told? Prayers that CT scans are clear.