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Surgeon missed the margins. 2nd surgery

Breast Cancer | Last Active: Apr 24 7:06pm | Replies (39)

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@sirene

I had to have a second surgery due to unclear margins but that came back clear, so that makes me wonder where it was. I didn't have radiation nor chemo. I was diagnosed stage 1A, no lymph nodes. What was your original diagnosis? And how did you find the recurrence?

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Replies to "I had to have a second surgery due to unclear margins but that came back clear,..."

Hi @sirene
In response to your questions, my original diagnosis was stage 1A 7mm, no lymph nodes, ER+ PR+ HER2 neg. I was found to be BRCA2+ and a few years later CHEK2+. Ki-67 < 20 moderate. I only recently discovered in the original reports that I had LVI which is considered a negative prognostic factor, but its significance is debated by some. Never mentioned to me. Maybe back in 2013 they knew less about it. I had a double mastectomy, ovaries/tubes removed, no other treatment. I was told tamoxifen wouldn’t make much difference in my case so just skip it and avoid the side effects. They said 3% chance of recurrence. Current oncologist doesn’t agree.

7 years later I felt a hard immobile painless marble on my bony chest (no reconstruction) in the shower. Luckily, I happened to have my annual ultrasound appt two days later and they immediately scheduled a biopsy and spoke as if they knew it was cancer. I hope they would have found the lump if I hadn’t. The cancer was now highly aggressive Ki-67 50% in my chest wall and pectoral muscle. I had the 1.2 cm tumor removed and then 37 radiation treatments. I have been on Kisqali and Letrozole for 3 years and will stay on those as long as they’re effective. Next 6 month CT scans of chest, abdomen and pelvis are in a couple weeks. 🙏🏻

I’ll pray it’s one and done for you. 🙏🏻