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Diagnosed with Ameloblastoma

Head & Neck Cancer | Last Active: Oct 28 6:03pm | Replies (227)
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@zigvero24

So, X-ray showed the ‘cyst’. We went to see a maxillofacial surgeon locally and he was concerned about removing it in the office so he referred us to the another surgeon at University of Florida Jacksonville, where they determined that they would do an outpatient procedure to remove it, as well as 2 molars, and do a biopsy at that time. I’m concerned that they should do the biopsy BEFORE this procedure. Your thoughts are appreciated.

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Replies to "So, X-ray showed the ‘cyst’. We went to see a maxillofacial surgeon locally and he was..."
Tom Schwerdt | @tomschwerdt | Apr 6 4:38pm

Both times I had a biopsy and a pathology report before any more significant treatment.

First round (~2007) I did "conservative" surgery which included two teeth and a big chunk of jawbone + autologous bone transplant + dental implants, which got me though to 2023 - this time I've pushed hard to pursue chemotherapy because my ameloblastoma has a the BRAF V600E mutation - and there is a recently FDA approved oral (pills) chemotherapy for other cancers with that specific mutation.

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