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Replies to "Yes I am in exactly the same spot. I have been on Arikayce for only a..."
MAC & Bronchiectasis | Last Active: Apr 8 9:28am | Replies (34)
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Yes I am in exactly the same spot. I have been on Arikayce for only a month and my cough is worse. That plus the big three anti biotics have me feeling so badly I am about to suggest to Docs that I can’t go on. I am almost 86 —- is it worth it all at this point in my life??? Good luck.
Replies to "Yes I am in exactly the same spot. I have been on Arikayce for only a..."
Before you give up altogether on the treatment, maybe just try dropping rifamycin (rifampicin or rifabutin). I just finished a clinical trial testing just Arikayce, azithromycin and ethambutol because rifamycin is so hard to tolerate. Good luck!!
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Well that is the 64 million dollar question. Is it worth it at age 86? Only you can answer that question. I struggled horribly on the Big 3, but Arikayce by itself cured my MAC. Praying for you. Irene5