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Questions Regarding Results after PRRT Treatment

Neuroendocrine Tumors (NETs) | Last Active: May 4 8:40am | Replies (28)
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@kwan

Hi Mark, hope PRRT worked well for your wife

My son had an unsuccessful Whipple operation last year and he was given 4 treatments of PRRT and is scheduled for a petscan soon. I'm anxious to find from this group what alternatives have been made available depending on how one responds to the treatment.

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Replies to "Hi Mark, hope PRRT worked well for your wife My son had an unsuccessful Whipple operation..."
kwan | @kwan | Apr 24 11:05am

My son finished his 4th treatment of PRRT in February and had his petscan Dotatate taken last week. The result is encouraging. His pNET has reduced from 6cm to 2.8 cm.
However we are at the crossroads as to decide on the treatment to follow.

According to the oncologist, the most aggressive approach is to have surgery to remove the tumor ( as this is the only one visible from the scan) but because he has gone thru an unsuccessful Whipple procedure last April, the experience was horrifying, the operation will not be as easy, besides the nearby lymph nodes removed showed they are infected.
The next alternative is to have radiation and in this regard, reference letter was written for my son to seek consultation from the radiologist.

Of course there is always the Octreotide LAR to fall back on.

In this sense, our oncologist doesn't want to commit himself. And we shall seek a second opinion.

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