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Atypical carcinoid tumour of the lung

Neuroendocrine Tumors (NETs) | Last Active: Apr 7 7:37pm | Replies (11)

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@pb50

I agree. The mystery will likely never be solved. Focus on the path forward for now.

Forgive me if this was answered but since the nodes they harvested in the bronchoscopy revealed malignancy, isn’t the next step Oncology? And is that surgeon who you want leading the team? I’d consider going just with pulmonologist and oncologist at this point.

Colleen gives great advice.

Best wishes….

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Replies to "I agree. The mystery will likely never be solved. Focus on the path forward for now...."

I only know that my cancer consultant, who was a younger woman and admitted to never having heard of a carcinoid tumour, told me I was being discharged from her care and would be under the care of the thoracic surgical consultant. I think that was because the surgeon is the one who deals with these tumours and actually has more experience. I’ll learn more during my face to face with her. I’ll also ask more about why I seem to be discharged from the cancer care team.