Wow. Take material risk if you want to know the results or pay for a PET yourself. Sounds like Medicare to me. That’s a shame - I’m in exactly the same classification. And I see my neurologist in 3 weeks.

I had a spinal tap decades ago chasing a headache diagnosis. I had a CSF leak afterward with accompanying horrific headache. Flat on my back for a couple Of days after they did a blood patch to seal the leak.

I’m not sure I could muster the courage to take that risk again. I will likely call around to radiology departments and get a cash pay price.