@kgitti
I’m glad you were able to get help from the hospital neurologist to get the right testing. No one ever suggested a spinal tap for me. I do have cervical and lumbar spinal stenosis (congenital), degenerative disc disease, small fiber neuropathy (idiopathic) and cervical spondylitic myelopathy. Everything was tied to my spine but even after ACDF surgery for cervical spine and lumbar spine injections, nothing was helping the weakness and numbness/pins and needles/tingling and extreme exhaustion. Did you have bloodwork that pointed to an autoimmune illness and inflammation? I have had some indications of inflammation but no one looked further. After a while, I stopped going to my neurologist because I wasn’t being helped. My hope is my new neurologist will look at me holistically and do the right testing to get me the right treatment to stop further deterioration.

Have a nice weekend.