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Besides managing BP, what else can slow the growth rate?
Aortic Aneurysms | Last Active: May 6 10:10am | Replies (45)Comment receiving replies
@upartist. Could you expand a little on how the Familial TAAD affects your treatment?
My husband has an aortic dilation. Like you, he has 0 CAD, exercises regularly, has never smoked and has eaten a mediterranean diet his entire life. I looked at the signs of Familial TAAD and he has a couple of them that are unusual, but not all the symptoms. We asked the PA at his aortic caregiver's office (not sure what the title is exactly) about genetic testing and she said it wouldn't make a difference in his care. I would like to hear what you have learned so that I can start to determine whether to bring it up with my husband. I think he is quietly extremely nervous about the dilation and I don't want to bring up the possibility of Familial TAAD unless/until I can determine what the change in treatment/outcome might be. Just interested in your experience as a place to start learning. Or perhaps a useful resource that you have found. Thanks in advance.
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Hi Bitsy Girl. First, I am sorry about your husband's situation. It is definitely hard to have a loved one living with an unpredictable condition, and looking to maximize strategies is a good thing and obviously provides some control. You might find answers at http://www.ahajournals.org and look at the 2022 publication of TAD management recommendations. It is very comprehensive, and should hold the information you are looking for. It details different kinds of genetic variants, symptoms, and progression. Always remember that the blood pressure control is the foundation treatment for the aneurysm, and that other vascular anomalies/conditions can affect or fluctuate the blood pressure. (IE: sarcoidosis, vascular spasm, bicuspid valve, etc) The way I understand it, is that some genetic predispositions can lead to early dissection. There is so much they do not know yet. The Genetics are advancing really fast. Its an easy test, and is becoming the main stream standard of care. All my kids will be getting screening echoes very soon. I hope this helps. Good luck and continue surveillance and proactive approach!
Upartist