There are some new drugs coming thru MS nerve demialating research that should help us. Probably too late for me, but maybe for someone your age. 🙏🏻

to harley22

I was diagnosed June 2023 after an EMG test with Sever Demyelinating and Axonal Sensorimotor Polyneuropathy. When I looked that up on line I found CIDP. The neurologist who performed the EMG test is also my doctor. He ordered a complete Neuorpathy bloodwork panel. Some of the blood test were done at the Mayo. The only test that was positive was the Erythrocytes Sedimentation Rate which is used to check the amount of inflammation in my body. Normal range is 0-15 mma/A and my result was 25 High. The cause of my Diagnosis became Idiopathic unknown what was causing the high levels of inflammation in my body. My immune system was attacking everything in my body. I spent countless hours searching for ways to reduce inflammation. This is what I started i immediately. I changed my menu of foods to those foods that decrease inflammation. Mainly fruits and vegetables. I stop all sugar, sodium, can fruits and vegetables, processed foods, very lean red meat once a week, lost 36lbs and started to exercise 60-90 minutes each day. You can find all this online. I have been doing this for 3 months now and I believe I might have slow down the progression of this disease. I also started to have very bad symptoms after I had 2 Covid shots. I have now become very in tune with this disease. When I see my neurologist in June I will explain what I have been doing and ask him if can shut down my immune system and then boot it back up at some point. If I am correct that I have lower the inflammation in my body, then by shutting down my immune system and booting back up it should fool my immune system that there is no infection in my body to fight. I hope to know by July. Sorry for this very long comment but that’s my story