My neuropathy is equally bilateral both arms and legs so I work the PT as much as I can. I take Ritalin daily for the exhaustion and a run of oral Prednizone when a virus won’t let go of me-just 3 times in the last two years for like long Covid and Norovirus. I use Every weapon I can find. I have found good doctors. I am NOT at the Mayo but in Albuquerque NM. Believe me it’s hard to find good docs in a town this size.

You have to be super proactive with your health as the nerve damage is much easier to pause than repair. I CAN’T emphasize that enough.

Dailyhope, coping with an illness like this is a huge challenge, I am sure for all of us. I too spend much of my day in recliner or on couch, but I try to keep busy. Focusing on helping others, like through this forum, makes me feel like I’m doing something worthwhile and takes the focus off my own problems. I do best in the morning so I try to get done what is essential then. I pace myself alternating hard and easy tasks. I can’t stand or walk very well so I try to be efficient with trips across the house and do tasks like meal prep sitting down. I also plan one enjoyable thing every day so I have something to look forward to, something fun or creative. Getting outside is important to me, as is going somewhere even if it’s an errand. I’m lucky to have a great husband and I say thanks and show appreciation for all he does for me. In spite of my best efforts I get down at times and allow myself to cry or be angry for awhile. It’s helpful to have a therapist to talk to and put things in a more positive perspective. I have been ill for 40 years so I’ve had a long time to work on ways to cope. CIDP for probably 12-15 years, but Guillain Barre following Covid really took me down last summer. I hope some of this helps you and treatment gets you to feeling better. Strength and hugs to you!