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Possible Sjogrens Disease

Autoimmune Diseases | Last Active: Apr 10 8:30am | Replies (35)

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@sbtheplumber1

@j77 I use Miebo prescription eye drops in the daytime( luckily insurance pays $719 for a 3 ml bottle it’s an oily eye drop) and refresh optive gel drops at night. I first found out I had Sjogrens when I asked the dentist about my toungue being white all the time and he said he knew exactly what it was because his wife had the same thing. I have the dry eyes(so bad I tore the tissue on my right eye) dry sinuses. I was put on Pilocarpine but didn’t like the sweating, after about 3 years I switched to Cevelimine and the sweating was a lot worse at first I’m finally taking 2 pills a day trying to get the 3rd pill started

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Replies to "@j77 I use Miebo prescription eye drops in the daytime( luckily insurance pays $719 for a..."

Thankyou so much for replying!I am going to take a look at the eye drops you use.Maybe my insurance will cover it.I know the original eyedrops my eye doctor gave me a prescription for was over 2,000 dollars because my insurance did not cover it.Nuts!I have always had a white tongue and severe bleeding gums,but not a single cavity.The Dentists could never figure it out because my teeth have always been Great besides the bleeding gums.My eyes are so dry I am worried about tearing tissue.They are so red underneath right now.It looks horrible.I am going to check out those pills you mentioned too.I just have to find a Good Rheumatologist now.Thankyou!

I’m going to ask my doctor about Meibo. I wonder why she hasn’t mentioned it to me already.