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@dadcue

Are you aware that Actemra needs to be stopped if he has any infection? Prednisone puts your husband at a greater risk of an infection too but Prednisone can't be easily stopped. Out of an abundance of caution, maybe waiting awhile before having this visit would be better. There are alternatives to face to face visits these days.

I was diagnosed with Reactive Arthritis long before PMR was diagnosed. Reactive arthritis derives its name from a reaction to an infection. I still have reactive arthritis. I dread getting any and all infections. All hell breaks loose whenever I get an infection. I remember those respiratory infections that persisted for months.

Maybe waiting until you know for sure Actemra is working and his Prednisone dose is much lower before having this visit would be reasonable.

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Replies to "Are you aware that Actemra needs to be stopped if he has any infection? Prednisone puts..."

That sounds very reasonable and something they can understand. I know they don’t want their dad to be like he was last month. And thank you for mentioning stopping Actemra if he gets sick. Our doctor told us to do that. I feel he is at super high risk while still on 70 mg of prednisone. We’re very new to all this so still trying to understand it all myself.