I have RA - a different autoimmune disease. But challenges are similar. I think the most important thing I needed my children and grands to understand is that the final arbiter of whether I feel a specific activity is threatening to me is me. They are all problem solvers by nature and in some cases by training. But I don’t want a visit that’s riddled with offering activities they believe will be safe and putting me in the position of saying no. It’s frustrating to them and painful to me.
So if everyone is peaceful with the ground rules of just being together then go. But if there are germy 3 yr olds in the room maybe they can blow kisses from across the room 🙂

For now - fall back on your rules of how to gather during covid. Everyone understands that.