1. < Chronic Pain

No Relief Ever and Pain Increasing; How Do You Stand It?

Posted by vickirobinson1952 @vickirobinson1952, Mar 12 7:18pm

My husband has chronic pain, and has had since his teens. (He is 62 now.) About 3 years ago he developed pain in his "sit bone" (ischial tuberosity) that has been steadily getting worse. Drugs don't touch it. Abbott's dorsal pain stimulator had no effect. Cortisone shots do nothing. (The lidocaine or whatever it is that accompanies cortisone shots gave an hour of relief.) He can't sit in a car or a plane for more than an hour without severe pain. He was a kayak racer, and loved it, but that's over. He can't ride his beloved bike anymore. We can walk about a mile or so, no more. They can't do nerve ablation. His pain doctor told him that perhaps a bursectomy might help, which is something we are investigating, but the pain specialist and neurologist have essentially said that they can't do any more for him. And so far, we have been unable to find an orthopedic surgeon who does this procedure.

And the pain just keeps getting worse. He's having problems sitting, so he's spending more time lying down. That's beginning to hurt too much too.

What does he do when it becomes unendurable?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

daniellecrpssucks | @daniellecrpssucks | Apr 1 7:03pm
In reply to @bebold "When a doctor says they can't do anything else stop going to them and find someone..." + (show)
@bebold

When a doctor says they can't do anything else stop going to them and find someone willing to try. None of us need drs who are no longer willing to even brainstorm. We need them to ne excited to help us.

Have you seen a good chiropractor? They saved my world after my 3rd back surgery. They wanted to cut again and warned me to not see a chiro. (Early 1980s) if they were wanting to cut again anyway, what did I have to lose? I found a chiro who specialized in backs and within months I didn't need my back brace or leg brace. I've been to others that help some but not like her. She had some magic on her side. Lol. I just this week listened to dr Pascal on youtube in Cary, NC. He professes great results with CRPS. Sounds like an intensive treatment but he might be worth doing a zoom with?

Jump to this post

Thank you so much for this info! I have CRPS that has advanced recently & I can't find anyone who can do anything at this point but I've never been to a chiropractor. I've always been afraid because of the CRPS but I guess I need to start looking. I really appreciate it!

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1 reply
BeBold | @bebold | Apr 1 7:53pm
In reply to @daniellecrpssucks "Thank you so much for this info! I have CRPS that has advanced recently & I..." + (show)
@daniellecrpssucks

Thank you so much for this info! I have CRPS that has advanced recently & I can't find anyone who can do anything at this point but I've never been to a chiropractor. I've always been afraid because of the CRPS but I guess I need to start looking. I really appreciate it!

Jump to this post

I found a negative review about a chiro NC clinic from someone on fb with CRPS. I contacted her an she said "waste of time" but they have good reviews too?

Whoever it is ask "do you know what CRPS is?" No? See ya. Same with PT. I go to PT 2ce week and they say PT is good treatment for CRPS. Not really anything they can do except help with whatever else is thrown off by limping, for me, my back spasms (back surgery caused my crps and still an issue 45 years later.) Watch the two MD experts on Youtube. I font get dragged into the ones pushing SCS. The two expert experts say NO! I believe them.

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cathy1111l | @cathy1111l | Apr 3 9:45am
In reply to @ripley "Do you take the CBD oil under your tongue? Do you space out doses throughout the..." + (show)
@ripley

Do you take the CBD oil under your tongue? Do you space out doses throughout the day? I'm in my state's medical cannabis program but none of the pharmacists have been much help with recommending what I should use. I don't think they offer a CBD oil in tincture form. How can you find the specific forms you recommend?

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Best for spasms:
B-Caryophyllene is the only Terpene that can activate CB2 receptors within the Endocannabinoid system.
9-Thca suppresses spasms
9-Thc
Spasticity- cbd, cbg, cbn, thc, Thca

Pain
Myrcene
Limonene
Lina look
Alpha Humulene
Beta-caryophyllene These are the major components needed to relieve spasms and pain. However the best combination of the cbd/th c is found in a medical liscensed despensary. However, Charlotte’s Web , Lazarus, CBD MD and others offer great products. It took me two years to find the ones that worked for me. I prefer capsules and tinctures from Surterra that are already measured and they have a wide variety. Back to medication and supplements: I take 600 mg of NA R Alpha Lipoic Acid from Immunovites. 1000 mg of turmeric root Extract -95 # curcuminoids and black pepper from ME First Living. I also take 5-325 mg hydrocodiacetam 3x a day. I can’t take the other meds that help with nerve pain. However I can tolerate memantine 10 mg bid which is wonderful for nerve pain. Then I use far infared devices for my legs, foot, knees. I also like my large Nikon magnet for my back. I hope this helps.

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1 reply
jenatsky | @jenatsky | Apr 3 11:31am

Your husband should try acupuncture!

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1 reply
cathy1111l | @cathy1111l | Apr 4 9:03am
In reply to @jenatsky "Your husband should try acupuncture!" + (show)
@jenatsky

Your husband should try acupuncture!

Jump to this post

I did for several months but it didn’t address the whole body nerve pain. I also did kinesiology, reiki as I am a reiki master teacher, nutrition supplements (BA in Holistic Nutrition, guided imaging, CBT, I’m a ACSW, and hypnosis as I also hold credentials in Ericksonian hypnotherapy. I’ve even written pain management programs for doctors. When one has the entire branch of nerves cut at T-9-10 it creates havoc with the entire body setting in motion the fibromyalgia and polymyalgia, and chronic spreading of crow and progressive polyneuropathy. I’m always seeking ways to quiet the constant electrical surges, contractions, and constant spasms in my legs. I also like to educate others on my findings.

REPLY
1 reply
lizziel1 | @lizziel1 | Apr 4 9:07am
In reply to @cathy1111l "Best for spasms: B-Caryophyllene is the only Terpene that can activate CB2 receptors within the Endocannabinoid..." + (show)
@cathy1111l

Best for spasms:
B-Caryophyllene is the only Terpene that can activate CB2 receptors within the Endocannabinoid system.
9-Thca suppresses spasms
9-Thc
Spasticity- cbd, cbg, cbn, thc, Thca

Pain
Myrcene
Limonene
Lina look
Alpha Humulene
Beta-caryophyllene These are the major components needed to relieve spasms and pain. However the best combination of the cbd/th c is found in a medical liscensed despensary. However, Charlotte’s Web , Lazarus, CBD MD and others offer great products. It took me two years to find the ones that worked for me. I prefer capsules and tinctures from Surterra that are already measured and they have a wide variety. Back to medication and supplements: I take 600 mg of NA R Alpha Lipoic Acid from Immunovites. 1000 mg of turmeric root Extract -95 # curcuminoids and black pepper from ME First Living. I also take 5-325 mg hydrocodiacetam 3x a day. I can’t take the other meds that help with nerve pain. However I can tolerate memantine 10 mg bid which is wonderful for nerve pain. Then I use far infared devices for my legs, foot, knees. I also like my large Nikon magnet for my back. I hope this helps.

Jump to this post

Would you elaborate more on the magnet therapy you use? What brand or type? I feel it may help me. Thanks!

REPLY
jenatsky | @jenatsky | Apr 4 9:23am
In reply to @cathy1111l "I did for several months but it didn’t address the whole body nerve pain. I also..." + (show)
@cathy1111l

I did for several months but it didn’t address the whole body nerve pain. I also did kinesiology, reiki as I am a reiki master teacher, nutrition supplements (BA in Holistic Nutrition, guided imaging, CBT, I’m a ACSW, and hypnosis as I also hold credentials in Ericksonian hypnotherapy. I’ve even written pain management programs for doctors. When one has the entire branch of nerves cut at T-9-10 it creates havoc with the entire body setting in motion the fibromyalgia and polymyalgia, and chronic spreading of crow and progressive polyneuropathy. I’m always seeking ways to quiet the constant electrical surges, contractions, and constant spasms in my legs. I also like to educate others on my findings.

Jump to this post

Do you exercise regularly with your own home exercise program? I have found that using my muscles has provided me increased benefit of decreased pain and decreased episodes of night spasms in my legs and feet.

REPLY
1 reply
je16384 | @je16384 | Apr 4 12:43pm

I had serious muscle spasms after one of my back surgeries. To stop taking crappy pain meds I smoke pot and that works great.

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caban | @caban | Apr 4 5:27pm

I had chronic pain when the small fibres in my feet were badly damaged…, not cut. I had a ketamine drip and amazingly the pain disappeared after 3 hours on the drip. I had the drip for 6 days. Amazingly wonderful. I still had burning feet and ketamine didn’t work for that but it has since gone because of my treatment . The pain hasn’t come back and I’m very fortunate as my small nerves have healed in one foot and the other foot has almost recovery fully. I am very very fortunate.

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bunnybear | @bunnybear | Apr 5 8:13am

He is going to have to find a doctor who will prescribe the correct medications. Lyrica Cymbalta, and an antidepressant like Wellbutrin together with my spinal stimulator work for my sitting pain which was debilitating and kept me in bed as well. Now I’m up and about. None of these things by themselves worked for me but together they do the job. Good luck to you.

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