Please do keep us posted! We are all interested in how you do, and everyone can benefit from learning about your Pluvicto experiences.
And one thing to add about side effects: my husband also has had some mild gastrointestinal issues such as constipation for a few days after the infusion. Miralax clears that up quickly.
I've just started Pluvicto after 18 years of fighting metastatic prostate cancer. We've kept it at bay all this time,. but now the PSA is taking off.
Any word of advice is welcome.
Thanks.
I saw somewhere on here but now can not find a gentleman that was going to start a trial of sorts with a second round of Pluvicto after completing the initial 6 cycles. I wanted to see how he did on this as my husband just completed his 6 th dose today at MDA .Does anyone have knowledge on this man’s outcome or can you direct me to him?
I saw somewhere on here but now can not find a gentleman that was going to start a trial of sorts with a second round of Pluvicto after completing the initial 6 cycles. I wanted to see how he did on this as my husband just completed his 6 th dose today at MDA .Does anyone have knowledge on this man’s outcome or can you direct me to him?
I remember reading the same thing with interest, because I started Pluvicto Dec 2023 and had great results, but I'm always looking ahead to possible options.
Prayers for all on this journey and their partners. I'll check the Mayo site for any references and forward if successful.
Blessings
I'm the Pluvicto repeat patient you are looking for. I was a clinical trial patient at the University of Chicago Medical Center for PSMA 617 LU177 in 2021-22 for Novartis Pharmaceutical. The USFDA approved the program in about late 2022 or 23 under the name Pluvicto. About 25 months later in 2024 and after exhausting other treatment options, arrangements were made with Novartis, Medicare, my supplemental insurance and my oncologist to repeat the 6 treatments. I've received 4 of the repeat 6. And, I am extremely happy to say, my response is, once again, remarkable. So much so, treatments 5 and 6 are temporarily paused to help reduce unwanted side effects and the remaining treatments can be administered at a later date.
This is a very rare situation, as insurance will only pay once. Since the first round of 6 treatments was a trial paid by the pharmaceutical company, the insurance providers viewed this 2nd round at their first. It is completely at my own risk. I'm kicking the perverbial cancer can down the road a little further, hopefully another couple of years.
Perhaps, by the time you need a second round (or I a 3rd), approval my be in place for this life saving treatment.
Stay in touch. I'm as curious about you as you are about me.
I'm the Pluvicto repeat patient you are looking for. I was a clinical trial patient at the University of Chicago Medical Center for PSMA 617 LU177 in 2021-22 for Novartis Pharmaceutical. The USFDA approved the program in about late 2022 or 23 under the name Pluvicto. About 25 months later in 2024 and after exhausting other treatment options, arrangements were made with Novartis, Medicare, my supplemental insurance and my oncologist to repeat the 6 treatments. I've received 4 of the repeat 6. And, I am extremely happy to say, my response is, once again, remarkable. So much so, treatments 5 and 6 are temporarily paused to help reduce unwanted side effects and the remaining treatments can be administered at a later date.
This is a very rare situation, as insurance will only pay once. Since the first round of 6 treatments was a trial paid by the pharmaceutical company, the insurance providers viewed this 2nd round at their first. It is completely at my own risk. I'm kicking the perverbial cancer can down the road a little further, hopefully another couple of years.
Perhaps, by the time you need a second round (or I a 3rd), approval my be in place for this life saving treatment.
Stay in touch. I'm as curious about you as you are about me.
Ontario approved it and my hospital will provide CVH Mississauga It even works better if one had Radium 223 which I have On Abiraterone now but PSA flared to 218 concerned Just did PSMA PET scan for qualifying for LU 177
Hi everybody, I started my Pluvicto therapy yesterday, I would like to exchange ideas, impressions, feelings etc. I know this is a newly developed treatment, so the body of information may not be extensive.
I am a 65 ( almost 66 ) old male, I was first diagnosed with prostate cancer in 2011, Underwent radical prostatectomy and everything seemed resolved. In 2019, the cancer appeared again, this time in my lymphnodes. Since then, I have been doing hormone therapy, at first with Lupron depot injections ( 22.5 mg. every 3 months ) and, starting in 2020, daily capsules of Erleada and Xstandy, plus Lupron. Since 2019 my PSA is been fluctuating from about .4 to .18, . In 2021, the cancer had spread to at least 2 locations in my bones, therefore , I have also done 3 separate sessions of radiation to resolve pain with mixed success. Started chemotherapy on May, 2023. Since the cancer stopped responding to hormone and chemo therapy about three months ago, my doctor recomended Pluvicto, which I started yesterday.
Side effects so far ( 36 hours into it ) : NAUSEA, LOSS OF APPETITE, INCREASED FATIGUE, STRONG MALAISE .
Although I try my best to mantain a positive attitude and not give in to my fears, I am in a situation that is very difficult : I have zero support, lost my wife in 2021 to Covid, and , having just moved to a different state just before, no friends or family. I would like to thank you all in advance for any exchange of ideas and impressions.
My husband is starting Pluvicto in a couple of weeks. I wish I could do more other than sending love, light and healing to you. I know it must be hard after losing your wife and not having a close suppport from friends and family.
Connect
Connect
Like
Helpful
Hug
Please do keep us posted! We are all interested in how you do, and everyone can benefit from learning about your Pluvicto experiences.
And one thing to add about side effects: my husband also has had some mild gastrointestinal issues such as constipation for a few days after the infusion. Miralax clears that up quickly.
-
Like -
Helpful -
Hug
1 ReactionHi @nhs61, I moved your post to this related discussion:
- Anyone on Pluvicto? Looking for a support team
https://connect.mayoclinic.org/discussion/anyone-on-pluvicto/
I did this so that you connect with others like @eugenelapietra1 @bicio58 @digger @redroadtraveler @kjbushur a@lcoleman3 nd others in addition to the helpful posts you've already received from @lag and @lisab2.
You may also be interested in the discussions I found using the group search:
https://connect.mayoclinic.org/group/prostate-cancer/?search=Pluvicto&index=discussions
@nhs61, how many treatments have you had so far? Any side effects?
I saw somewhere on here but now can not find a gentleman that was going to start a trial of sorts with a second round of Pluvicto after completing the initial 6 cycles. I wanted to see how he did on this as my husband just completed his 6 th dose today at MDA .Does anyone have knowledge on this man’s outcome or can you direct me to him?
I remember reading the same thing with interest, because I started Pluvicto Dec 2023 and had great results, but I'm always looking ahead to possible options.
Prayers for all on this journey and their partners. I'll check the Mayo site for any references and forward if successful.
Blessings
-
Like -
Helpful -
Hug
2 ReactionsI'm the Pluvicto repeat patient you are looking for. I was a clinical trial patient at the University of Chicago Medical Center for PSMA 617 LU177 in 2021-22 for Novartis Pharmaceutical. The USFDA approved the program in about late 2022 or 23 under the name Pluvicto. About 25 months later in 2024 and after exhausting other treatment options, arrangements were made with Novartis, Medicare, my supplemental insurance and my oncologist to repeat the 6 treatments. I've received 4 of the repeat 6. And, I am extremely happy to say, my response is, once again, remarkable. So much so, treatments 5 and 6 are temporarily paused to help reduce unwanted side effects and the remaining treatments can be administered at a later date.
This is a very rare situation, as insurance will only pay once. Since the first round of 6 treatments was a trial paid by the pharmaceutical company, the insurance providers viewed this 2nd round at their first. It is completely at my own risk. I'm kicking the perverbial cancer can down the road a little further, hopefully another couple of years.
Perhaps, by the time you need a second round (or I a 3rd), approval my be in place for this life saving treatment.
Stay in touch. I'm as curious about you as you are about me.
-
Like -
Helpful -
Hug
3 ReactionsOntario approved it and my hospital will provide CVH Mississauga It even works better if one had Radium 223 which I have On Abiraterone now but PSA flared to 218 concerned Just did PSMA PET scan for qualifying for LU 177
-
Like -
Helpful -
Hug
2 ReactionsMy husband is starting Pluvicto in a couple of weeks. I wish I could do more other than sending love, light and healing to you. I know it must be hard after losing your wife and not having a close suppport from friends and family.
-
Like -
Helpful -
Hug
1 Reaction