Thank you for your reply. Unfortunately, I could only afford one MRI at five-years post resection: I couldn't get insurance for two years, and I had a graft surgery for my facial paralysis where the surgeon left a sponge inside me; and due to my vertigo I took a bad fall that required surgery. These events cleared out what savings I had left.

I did find out at that 5-year MRI, that there are two small tumors still on my brain stem.

I wonder if it's growing because when I move my head, I have pain at the tumor site. I guess that's to be expected.

I cannot and will not have anymore surgery, so I haven't seen the value of getting another MRI. Because of this, my surgeon isn't willing to consult with me.

I accept that, but the attacks are disconcerting and I wish someone would tell me what I can expect. No one will answer that question. I feel I am being punished because I have opted not to have surgery again. But after almost four months away from home because of a botched surgery, facial paralysis, and several ripple effect surgeries, I'm done.

Can you direct me towards any information as to the path I'm on?