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← Return to Mestinon for Long Covid
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That is Amazing to hear!The Doctors still don't know what is wrong with me and I do think it is related to long covid.The neurologist did order new blood work for seronegative Myasthenia Diseases.My TSH was slightly high so they raised my synthroid level.They are also testing me for Cushings Disease.My whole body was atracked,but the specialists can only find little things.I have lost the strength in my pelvis area,shoulders,and trunk.I was just thinking mestinon would give me the strength to start exercising again.I went from an athlete to basically disabled.I did do a Genetic test that showed a possibility of MD Diseases such as limb girdle muscular dystrophy.We don't have MD on either side of my Family,but maybe covid triggered something.It is just frustrating the Doctors have no idea what is wrong with me.
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I can relate to your symptoms! I too had full work ups for Cushings, thyroid, etc. until finally Long Covid was discovered.
I had gained and swelled 40 pounds of weight in 3 months with severe heart palpitations, temperature regulation issues, brain fog (difficulty following conversations), bed bound for a year, and housebound for another year. MCAS and gut dysbiosis were also toppers. (Be super careful about exercising… exercising and trying to get back to sports got me into this mess. There’s only thing that has helped since this crazy crash happened to me, is rest, rest, rest. Then lots of trials of ALL kinds of medications and supplements. I first got Covid end of 2019 in Europe but never this bad until I started exercising a lot 2 years ago. My world came to a complete halt… but Mestinon has given me hope!)
I can say I’ve just tried Pyridostigmine (Mestinon) and it helps! I have to take a SUPER low dose (7-10mg) and titrate up from there due to being incredibly sensitive to drugs and supplements (thanks MCAS). But it’s like one drug out of many that I don’t react to… and it helps!!
Even at this low dose!
My swelling is even going down some, and my energy is better. I’m only taking 1x/day rn and on day 5.
I’m going to add OAA next to see if this will also improve my muscle weakness.
There’s a test for LC that measures if you have the spike protein persisting in non classical monocytes. If you still have this then it can be wreaking havoc on your whole system and I believe that it’s the root cause of vagus dysfunction and dysautonomia.
I’m hoping to get on the treatment protocol of Atorvastatin/Maravoric to clear the spike proteins that I’ve tested positive for. So I’m trying to build up my mitochondria (Mestinon and OAA) as much as possible prior to starting statins.
This drug has given me lots of hope for a life again 🙏🏻🙏🏻
I just hope it lasts! (I’ve had so many fleeting weeks of feeling better only to have it crash again). Hope this one can be lasting!
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It’s extremely frustrating. I contracted Covid on a trip to India, Aug 22. Prior to that I had been extremely active, I have my own medical practice, and typically walk/hike/ride horses 2 hrs a day, or more.
I was completely debilitated, unable to think, climb a few stairs, or even just standing for a short while was impossible.
I do believe there is hope.
Try the Mestinon !