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← Return to Mestinon for Long Covid
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Post-COVID Recovery & COVID-19 | Last Active: 1 day ago | Replies (16)
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Hi
Short answer: the Mestinon was a miracle for me. I started low last summer- 8 mo ago. I now take 60 am and 30 pm with no side effects.
I had a flare last month after a family crisis and added Nicotine patch 7 mg.
I am 18 mo with Long Covid. Like others I’ve tried PT, supplements, acupuncture , etc.
Replies to "Hi Short answer: the Mestinon was a miracle for me. I started low last summer- 8..."
Hi!
It’s great to hear of potential new meds that could help!
My doctor prescribed Mestinon for me but I’ve been too scared to take it due to MCAS and I seem to react to almost everything.
But I’m going to give it a try tomorrow.
I have a couple of questions:
How long did it take to notice changes?
And what were the first changes noticed?
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That is Amazing to hear!The Doctors still don't know what is wrong with me and I do think it is related to long covid.The neurologist did order new blood work for seronegative Myasthenia Diseases.My TSH was slightly high so they raised my synthroid level.They are also testing me for Cushings Disease.My whole body was atracked,but the specialists can only find little things.I have lost the strength in my pelvis area,shoulders,and trunk.I was just thinking mestinon would give me the strength to start exercising again.I went from an athlete to basically disabled.I did do a Genetic test that showed a possibility of MD Diseases such as limb girdle muscular dystrophy.We don't have MD on either side of my Family,but maybe covid triggered something.It is just frustrating the Doctors have no idea what is wrong with me.