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Has anyone really gotten over CIDP?

Autoimmune Diseases | Last Active: May 20 11:48am | Replies (49)

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@dlydailyhope

@kgitti
What were your earliest symptoms that led you to getting diagnosed with CIDP? How long did it take for you to get properly diagnosed and treated?

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Replies to "@kgitti What were your earliest symptoms that led you to getting diagnosed with CIDP? How long..."

Following an odd virus, I keep saying 2019. But it was late summer of 2020 I think, I started having numbness and tingling in my lower legs, suspecting a spinal problem. I had numerous tests including MRIs. The numbness and tingling moved rapidly into my lower arms and my regular neurologist hospitalized me at Xmas. I fought her on this hoping it was spinal. More tests more MRIs looking at MS etc. Nothing. An awesome neurologist working the floor thought they were heading the wrong direction and asked to keep me a few more days for more tests and did a spinal tap. It was off the chart and a nerve conduction study. Terrible. By New Years they were blasting me with IVIG and corticosteroids. He might have kept me out of a wheelchair.