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Has anyone really gotten over CIDP?

Autoimmune Diseases | Last Active: May 20 11:48am | Replies (49)

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@dlydailyhope

@kgitti
Thank you for the information. I greatly appreciate it. I will need to look at my blood work done in 2017 and 2019 to see if any of what you had done was done as a baseline for anything updated in 2024.

Did you ever have a small fiber neuropathy punch biopsy? I had samples taken for upper thigh and calf and was diagnosed with idiopathic small fiber neuropathy (severe). My neurologist at the time did nothing to treat me. I started talking alpha Lipoic acid to help with burning feet and used capsaicin nerve pain creams which helped some.

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Replies to "@kgitti Thank you for the information. I greatly appreciate it. I will need to look at..."

@kgitti
What were your earliest symptoms that led you to getting diagnosed with CIDP? How long did it take for you to get properly diagnosed and treated?

No I did not have the biopsy. Your neurologist was not good to not treat you. The neuropathy is much easier to halt than repair. I have tried the ALA but not sure it does anything.