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Has anyone really gotten over CIDP?
Autoimmune Diseases | Last Active: May 20, 2024 | Replies (49)Comment receiving replies
Please understand. I have a life, even a good life by most standards, most of my high school friends are dead. I’m able to work some, a successful artist/photographer and I compete with my Australian shepherd’s in Dog Agility when I’m feeling well with one being a two time champion since I got sick. But it’s a full time struggle/job in and of itself. Be well.
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@kgitti
Thank you for the information. I greatly appreciate it. I will need to look at my blood work done in 2017 and 2019 to see if any of what you had done was done as a baseline for anything updated in 2024.
Did you ever have a small fiber neuropathy punch biopsy? I had samples taken for upper thigh and calf and was diagnosed with idiopathic small fiber neuropathy (severe). My neurologist at the time did nothing to treat me. I started talking alpha Lipoic acid to help with burning feet and used capsaicin nerve pain creams which helped some.